Showing posts with label chemotherapy. Show all posts
Showing posts with label chemotherapy. Show all posts

Monday, April 6, 2015

Hey look! A new blog post!

Today I have a little energy.

That hasn't been the norm lately.  For months now I've been feeling like a clock that has been gradually winding down, going slower and slower as the days go by.  I have been exceptional at holding down my sofa though.  Let me tell you it is going nowhere!  My 5 year cancerversary was last month, and of the past 5 years that I have been diagnosed with cancer only one of those years has been without chemo.  Let me tell you four years of chemo can really wear on a person.
I am always cold during my IV's

I thought I was going crazy for about a month.  I was shaky, unstable, feeling really strange and weird and just not right.  I knew something was wrong but I just couldn't put my finger on it.  One day I almost went to the ER but knew that they would just blame it on the chemo.  So I called my nurses and picked their brains.  Both my naturopath nurse and my oncology nurse felt pretty sure my I had hyperthyroidism and the symptoms seemed to fit.  My blood labs came back and my oncology nurse said I was just on the low range of normal and blamed the chemo for my symptoms saying that was the only thing it could be.  My naturopath nurse and doctor felt that even though I was in the "normal" range it was too low on the normal side and gave me a script to help.  Within two days I felt back to my version of normal again and a week later I crashed for a week sleeping 13+ hours a day just to counter all the hypertension I was feeling the month before.   It has been a strange year so far...

Lately I have been so tired, unmotivated, completely fatigued, and utterly lethargic not even wanting to expend the energy to cook or clean.  Often I lay in a puddle on the sofa until I have to get up and drag myself into my appointments for IV's or chemotherapy or various other doctors appointments.  It is so completely different than what I am used to being able to do.  I remember I used to be so independent, often going hiking and camping alone, dreaming and anticipating and scheming about my next adventure.  Even when I had two herniated discs in my back I still muscled through the pain and did as much as I could.  Most of the time now I don't even have the energy, drive, or motivation to leave my house unless I have to.  This has been messing with my mind too.  It is an emotional drag to feel so crappy every day.  I've been really good lately at making myself feel guilty for all of the things that I haven't done, or that I need to do, or that I want to do.  Lots of guilt and a little bit of depression as a result.

The suspension bridge at Falls Creek Falls
The good news is that I got a little energy to get out last week and go for a small hike with a good friend.  We went to Falls Creek Falls on the Washington side of the Columbia River Gorge.  It was exactly what I needed!  It felt so good to get out and get some exercise and fresh air.  We saw a hummingbird dive bombing a woodpecker and heard a lot of other pretty bird songs.  The falls and suspensions bridges were amazing and we even had a little time to ourselves at the main falls before others showed up.  It was calming and serene.  I had to stop quite a bit on the trail on the way up to the falls but on the way back I was bouncing!  The only bad part of the day is that I got sick in the car on the way home...luckily my friend had a plastic bag in her car.  This prompted an unexpected detour to a Burger King garbage can then everything was fine and we were on our way home.  It was a small price to pay for such a beautiful day.
The last tier (of 3) at Falls Creek Falls

The bad news is that I have had so much chemotherapy in the last five years that my body is not going to be able to handle it for much longer before it starts having major difficulties and I don't want that to happen.  My awesome nurses at my oncology center referred me to a doctor who finds clinical trials for your specific cancer.  I have a call in to her and am anxiously awaiting her response.  The difficulty is that it costs $300 which I don't have but that is a small price to pay for having someone do the legwork of finding a trial for you as well as getting you into it.  She looks all over the entire country to find one that will fit for your needs, so who knows, I might have to travel.  I am hoping to find one here in the PNW but at this point I will go where ever I need to go.  My options are running thin at this point.  My next scan is coming up near the end of the month (it actually hasn't been scheduled yet but will be soon) and once I get the results from that I will decide how much longer to get chemotherapy.  My hope is that the tumor that sprang up anew in January will have either gone away completely or shrank.  If it has grown at all I am going to panic a bit, or a lot.
Every other Tuesday

If you have emailed me, please forgive me for not getting back to you as of yet.  I hope that you understand that it has been very difficult for me to do the smallest of tasks.  Two of the most asked questions I receive via email is regarding my diet and my supplements.  Below I have provided a link to each one (these can also be found in my blog under past postings).  I am very sorry to lump everyones questions into this one impersonal post, however I must conserve my energy as there is very little to go around lately.

Link to supplements

Link to diet


One thing I am very much looking forward to is the little vacation/road trip I have planned with my mom.  We are traveling down to the desert and doing a little sight seeing and light hiking and maybe a little rock hounding.  I absolutely LOVE road trips.  Although, if I had any vacation I wanted, it would be in La Paz, Mexico.  Now THAT place is nothing but peace, relaxation, and a loss of all of your worries.  I have only been there once but I very much hope to go back there again one day, until then the desert is calling my name.
I am also excited about gardening.  Somehow even if I have no energy and the sun is shining and I am able to be out in the garden at my dads house sitting there in the dirt digging holes and planting vegetables I am happy and content.

Those are the two things I am looking forward to and the many scary things I am dreading...Fingers crossed for a positive scan and an awesome clinical trial and in the meantime I will be holding down my sofa :)

Many healthy blessings to you all!

Wednesday, September 11, 2013

Catching up

Hello!

The past month has been an interesting one.  I got to spend some time with family and friends then there was the weekly grind of the combination of Vitamin C IV's and chemo 4 times a week for an average of 4 hours each.  I'm getting more used to it now though.  I'm just hoping that the skin over the place on my port that gets stabbed will hold up long enough to make it through all of this without tearing or deteriorating and thus needing some kind of surgery to graft skin or something....not thinking about it...
Vitamin C love!

Regardless of all the stabbing the Vitamin C is incredibly worth it!!  I ended up having to miss both my C IV's and my chemo last week due to a family health emergency.  My mom was sick with a sinus infection the prior week and ended up getting some antibiotics which didn't help and the sinus infection ended up turning into pneumonia.  She finally felt so bad that she asked if I could come up to Seattle and help take care of her.  We ended up at the ER at Swedish to which she was admitted overnight and at the doctors office twice.  It was the sickest I have ever seen her and she had me really worried.  After all she has done for me it was my turn to get to do something for her.  She has been running and working herself ragged (especially since the beginning of the year) to take care of me and it finally is catching up and taking a toll on her health. She gives so much and it made me feel so good to be able to do something to help her even if it was just for a week.  Thankfully she is doing much better now and as of yesterday even went back to work (half days right now) because it is hard work recovering from pneumonia...luckily I have never had to find out.

Anyway about the Vitamin C being worth it (got sidetracked).  Since I missed last week's IV's I started noticing that the side effects of the chemo started getting a bit worse; more nausea, some neuropathy, more ringing in ears, blurrier vision, less appetite, etc.  Interesting isn't it?  I can tell the difference for sure, the C is amazing stuff!  It's just a crying shame that insurance wont cover something so incredibly beneficial, but I'm not about to get started on that stuff.

OH! finally got the results of that Spectracell blood analysis back.  It shocked both my nauturopath and me to see that I am only slightly deficient in 3 things....B2, oleic acid, and D3  my immune response is above average and my ability to detox is in the normal range.  Even though I have cancer and even though I am getting chemotherapy my results were still this good! I just knew that vitamin C IV's were the way to go!  This test was representative of the past 6 months not just  snapshot in time.  Pretty cool test and even more impressive results.  They are all easy fixes too, gonna take a B2 supplement (folic acid) and drink a shot of olive oil every day (7800mg of oleic acid!), and increase my D3 &K2 spray to twice daily and Shazam! Not too bad huh?!

My CT scan is scheduled for Sept 25th with results on the 27th.  My oncologist still thinks that I am doing very well and for him to say that is pretty awesome in my book.  In about two weeks we will see just how much of a kick ass job this Vitamin C is doing and I can't wait to find out.  This is my plan to proceed:  If the scan looks good but there is still room for improvement I am going to try to get the C's for at least 2-3 more months depending on what my ND says.  If it looks the same (or worse) then I will figure it out then and try to go see a healing guru in another country :) yep.

The garden at dads is growing so fast and so abundantly that I have been too busy to get up there enough to harvest much of it.  I really wanted to get much more from the garden this summer but I also did not anticipate being in treatment 4 times a week either.  At least dad has a big freezer to store some veggies in for the winter.

Looks like another busy couple of weeks lined up but that is what keeps life interesting.  I am starting to get over the shaky stuff a bit more and with all of this extended summer weather (90's in Portland this next week!) I am going to try to make some time to get out for some late summer hiking up in the mountains.  That is one thing I didn't get enough of this year.  I can't believe I have only been camping one time! Dang!

Your generosity is FAR OUT!
I wanted to give a shout out to everyone out there who has been donating to my therapy and well being.  I literally could not be doing this well without your help.  You all have no idea just how much this helps and means to my health and I am in great gratitude every minute of every day and every time someone tells me that I am looking great I think of all of you and how it is because of your generosity (and some positive mental attitude) that they are saying these words to me.  Please don't ever think for one minute that I take any of it for granted and I am forever thankful.

Thank you!

If you would like to contribute, you may donate directly into my account at my clinic by contacting them at:
The Center for Traditional Medicine
503.636.2734

Or by PayPal at:
laura.york71@gmail.com

Or visit my Amazon wish list which includes supplements and vitamins etc. at:
http://amzn.com/w/3A2XN4O4FP6U1



Monday, July 1, 2013

Never A Dull Moment

So I recently have been taking a little time off and really relaxing.  It has been really nice to unplug and get some time away from phones, email, social media, doctors, appointments, good news, bad news, no news, decisions, scans, daily life, etc... I got to spend some quality time relaxing with my best friend (my mom) and it was simply divine and oh so very needed by both of us after the crazy 6 months that have been 2013.
Now it is back to the grind, the assassination, the kicking of some cancer booty, time to roll up the sleeves and put my game face back on.

From the last CT scan back May,  it appeared that I had some cancer going rogue and building condos outside of Livertown, collectively they appeared to be about the size of an almond (we thought there were only two of them at this point).  Then my radiologist recommended that I get a PET scan to make sure of exactly what we were looking at and that way I could make a more informed decision about my choice of therapy.

So I recently got results back from the PET scan and the first sentence says "Significant progression of disease since July 2012..."  Not good.  My oncologist shows me the pictures and there are now a bunch (too many to count) of places outside of my liver mostly in nearby lymphs (one in a lung and one in my pelvis) where there showed PET avid activity (it took up the sugar rich contrast like cancer does) so this now leaves me feeling once again a bit more anxious about my path forward.

I have spoken at length with my oncologist and natural doctor and we have come up with a kick ass cancer assassinating plan!
Vitamin C Love

I am already taking such things as DCA and many other natural cancer fighting treatments and supplements and I will continue to get high dose vitamin C IV therapy.  I am going to sandwich my chemo treatments right in between two vitamin C IV's.  So still vitamin C three times a week  and chemo at least once a week (maybe more frequent to start I dunno yet).
I start round two of chemotherapy tomorrow at 9:30am.  The chemo will be the same as last time.  Mega dose to start with then as my body weakens the dose weakens.  They like to hit it hard at first.  My gramma is coming down to go with me, ya know, cause grandmothers are awesome like that!  The vitamin C is supposed to make the cancer more susceptible to chemotherapy and it is said to make the side effects up to 50% less severe! HELLS YES!! This is what I am going to manifest! Less side effects  NO side effects! Plus they will no doubt pump me full of steroids and other anti nausea drugs as well as cytotoxins and they seem to make it much more tolerable.  Sometimes drugs aren't so bad after all :)

Not exactly what I was envisioning, especially after such a tumultuous start to the year anyway, but hey...never a dull moment in the life of The Cancer Assassin!
Bring it on! I've done it once I can do it again, hell, I'm a pro and I am already ahead of the game now.
My goal right now is just to appreciate each and every single day, drink it all in and share the love!



Monday, May 20, 2013

Never a dull moment in the life of The Cancer Assassin!

My mom came down to Portland on Friday for what we both thought would be a pretty uneventful visit with my oncologist to discuss the results of the CT scan I had done last Wednesday.  I knew that the left lobe of my liver looked pretty badly beaten up with battle scars from the last chemo onslaught and I also knew that there were new tumors in there too.  I expected that it would be pretty much the same as the scan I had done not even a month ago and that this was all just procedural so that we could begin the next radiation treatment within the coming weeks.  What I did not expect was bad news, but bad news is what we got.
6 miles in on Eagle Creek

Apparently my cancer has now metastasized into what they think to be some nearby lymph glands.  The trouble right now is my oncologist was really sketchy on saying exactly what this new mass was, although he kept insisting it was most likely a lymph gland.  This new mass is pushing on my IVC (inferior vena cava), my portal vein, my diaphragm, my spleen, my stomach and everything else in that vicinity making for some really uncomfortable times on occasion and on other occasions making for a trip to the medicine cabinet for morphine.

The CT report describes this new mass as a "low-attenuation lesion" which means that it is not solid enough so that light cannot pass through it...in other words the higher the attenuation the more solid the mass is, so I am going to milk that statement as good news.  At least it is not solid enough so that no light passes through...  The report also suggested that the new swollen mass could be a result of the compression of the tumors on my arteries and such...

Basically what it boils down to at this point is this:

I got bad and ambiguous news on a Friday afternoon leaving me to sit with my concerns, thoughts, worries, fears, and questions all weekend long.  No one really knows anything yet and my next step is to contact my radiologist and go over the scan and reports with him.  Radiologists are more accustomed to reading and looking at scan images so it was suggested to me that instead of going over my scan with my oncologist I should be going over it with a radiologist and that is exactly what I am going to do before I make any decisions.  I also have a call in to my Natural Doctor and will be speaking with him as well about my options.  Oncologist is recommending more chemo again.  I am not sold on that idea.  I know from experience that although chemo kills cancer cells it also kills lots and lots of healthy cells too not to mention the horrid side effects that come along with it.  I am talking quality of life here.  I think that this round I may just stick to natural medicine.

Tumors are not the problem here.  The tumors are the symptom of my cancer.  We can use chemotherapy OR we could use natural methods all day long killing tumors but until the real underlying problem that is causing the tumors to grow is fixed and the whole body is healed the tumors will just keep coming back.  It is time to get down to the nitty gritty again and be insanely vigilant and healthy.  It may just be time for something drastic.  I KNOW that it is time for a vacation.

This new mass appeared in the short time of one month! This is scary to me!  How much time do I have to peruse the choices of this new decision I must make?

A friend asked me this weekend "What am I going to do?"  My reply was "I really don't have any choices."  The only thing my insurance will cover is more chemotherapy.  It wont cover any natural therapies like high dose vitamin C therapy which is natural chemotherapy and doesn't have any negative side effects and kills cancer every bit as well as chemo does.  My only choices are a) get chemotherapy or b) do nothing.  I simply cannot afford to pay for natural therapies, they are not cheap. But I don't want to get more chemo and live the rest of my days being so sick from treatment I cannot enjoy my life.

I just wished that I would fall asleep last night and wake up to realize it was only a dream or that maybe it would just vanish as mysteriously and quickly as it appeared.  I wonder that if I stuck my head so far in the sand all this cancer crap would just disappear, you know "out of sight, out of mind".  I don't want to sit and worry about it all so I have been trying not to think about it.  What is the use in getting all worked up over something that I really don't even have all of the information about just yet.  It wont do any good and will just stress me out.

It's crunch time.

Wednesday, September 26, 2012

Bassackwards! Something has to change!

I woke up in a foul mood this morning.

I feel like my body has been trying to fight off some sort of crud (other than the "normal" detoxing dead tumor material from my liver crud) lately.  On Sunday and Monday I slept for 31 out of 48 hours...mostly on the sofa.  I can't sleep on my bed it seems.  Years ago when I was in crippling pain from two bulging discs in my lower back I purchased one of those memory foam mattresses.  At the time it was great for my back.  Ever since I got chemo it has been my nemesis.  It is waaay to hot.  I can never get comfortable, can't seem to sleep for more than an hour or two at best without flopping around like a fish out of water.  So I get up and head back to the sofa to try to get some precious sleep.  Sleep is our bodies chance to recover and heal.  My liver has been hurting a lot lately.  I am assuming it is because I just can't sleep.  If I'm not sleeping then my body never has a chance to repair the damage done by the cancer and the chemotherapy.  Maybe that is why my liver hurts a little more and more each day and I know for certain that is why I woke up in a foul mood today.  It is irritating to not be able to do the most basic of functions like sleep.  When I was getting chemo I couldn't sleep because I had horrible hot flashes.  I would go to bed freezing (mostly because my boyfriend at the time was too cheap to turn the heat in the drafty, moist house up past 62 degrees) wake up slimy and covered in sweat and feeling like I wanted to crawl out of my skin only to start freezing all over again.  Pulling wet sheets over a wet, sweaty body is not fun.  This would go on in a cyclic manner throughout the night about every two hours or so.  It was certainly no fun.

I take LDN (low dose naltrexone) prescribed by my naturopath as a preventative cancer measure.  LDN has been proven in studies to help boost the immune system and kill cancer throughout the body. It has no real horrible side effects like chemotherapy but it does come with the possible side effect of sleeplessness and vivid freaky dreams or nightmares.  Both of those side effects are what I experience every time I lay down to sleep.  Toss the combination of the uber hot mattress into the mix and you end up with one very unhappy camper.

My prayer quilt
Last night was no different.  I was looking forward to sleeping, especially since I have been seemingly so good at it the past few days.  But the sandman did not pay me a visit last night.  I fell asleep in front of the tv last night on the sofa.  Woke up at 2am and promptly went to bed (after popping my LDN of course).  About half an hour later I was tossing and turning.  I pushed my pillow off to the side and slept without one.  I turned over and over trying to find the spot where I would be comfortable enough to fall asleep.  At 3:30 I decided to get up and try the sofa...after laying there for about half an hour I finally found sleep.  Horrray! Then an hour later I woke up to my cat puking then walking over me trying to tell me that it was time for breakfast (only a few hours early).  I got irritated and decided to head back to the bedroom.  Nice try! As I picked up my favorite quilt (made by one of my grad school friends just for me when I was first diagnosed) I felt a wet spot on my hand.  Yay! My cat decided to poop on me while I was sleeping.  So here I am at 4am cleaning poop off of my hand and off of my favorite quilt all the while being irritated that I can't sleep and perturbed that my cat decided to have a bowel movement on me while I was getting what little sleep I could find.  Not a good start to the day.

My liver has been hurting more and more lately. It pretty much always hurts some but lately it has been very noticeable.  My last visit to the oncologist was back in July.  It was pretty ordinary.  Lay back on the paper covered exam table, he feels my liver for about 5 seconds then says "You're doing great, come back in 4 months".  This is a typical visit.  So my next appointment is the day before my birthday (October 16th, my b-day is the 17th).  At first I though it was unusual to go one month in between appointments, especially after seeing him every other week.  Then it became two months as my scans started looking better and better.  Now it is 4 months.  It makes me worry.  I worry because my liver hurts (is it the cancer coming back, or is it just that there was so much cancer in my liver that it is still detoxing and that is why it hurts?).  I worry because I don't want to get chemotherapy again, it was horrible!  A facebook friend (who also has CC and got the same chemo treatments as I did) asked me the other day what I would do if the cancer came back.  Would I get chemo again or would I seek the natural route.  I immediately said that I would seek natural treatment as I recalled all of the side effects of the toxic cocktails that would course through my veins.  This morning as I woke up to my liver hurting and as I tried to feel my liver the way my oncologist does during exams checking for any hard places or painful lumps I thought a horrifying thought.  What if my cancer IS back?  Yes, I would want to seek natural treatment but in all honesty I simply wouldn't be able to do that financially.  Our lovely insurance system will cover all kinds of toxic poisons like chemo and other pharmaceuticals but it wont even cover a portion of any sort of natural therapy like high dose vitamin C therapy which is clinically and scientifically proven to kill cancers of all kinds.  So where would that leave me?  I certainly don't have the money to pay for vitamin C therapy at $160-$180 per treatment once or twice a week.  Chemotherapy costs thousands of dollars each treatment but insurance covers that...so as you can see this puts me in a bind.  Don't you think it is lame and bassackwards that insurance will cover toxic poison at thousands of dollars for every visit but wont cover a natural therapy that is a fraction of the price and has less side effects and is proven to kill cancer whereas chemotherapy is NOT a cure whatsoever and quite likely only leads to further complications and other secondary cancers?  Where is the logic here?  This logic is only designated to line the pockets of the already rich pharmaceutical companies which also have their ties deep in our political system, food system and water supply.  They want us to be sick so that they can "treat" us.  They don't want to cure us.  Doctors are not in the business of curing cancer they are in the business of treating cancer, treating symptoms, giving us pills and radiation and chemotherapy because every time they use a product from big pharma they get a little richer and a pat on the back for prescribing the latest toxic treatment.  Pretty messed up if you ask me.  Now don't get me wrong, I don't think that the doctors out there are intentionally trying to kill us.  It is not their fault that they were told and educated that the way of pharmaceuticals was the only proven way to treat cancer.  My oncologist poo-pooed all of my natural therapies.  His argument was always the same, "It hasn't been scientifically proven in clinical studies" he would always say, but luckily for me he also told me to "do whatever makes you feel good as long as it doesn't interfere with what I'm doing".  What he didn't know was that the things I was doing was discouraged in the conventional medical world and thought to interfere with chemotherapy.  I did it anyway (like take mega doses of antioxidants before and during chemo) and 17 months after a grim terminal diagnosis I had somehow killed the cancer that covered my entire liver.  How's that for scientific proof?  Can you tell I'm in a bad mood this morning?
Just about anything beats chemotherapy!

I don't like to think about "what if".  I don't want to worry about my cancer coming back or why my liver hurts...I don't want to give it too much of my energy or thoughts because I don't want to manifest it into being.  It is hard not to worry though when I feel like there is a softball under my ribs.  It's hard not to worry about what I would do if the cancer did come back.  My choices would be very limited.  Limited because our medical system is so screwed up that I would not be able to afford proven natural treatments with no side effects and more success rates than the toxic cocktails of big pharma that debilitate you and turn you into a 90lb, hairless, moody, chemo-brained, zombie that looses her stomach every couple of hours.

Something has to change.  In the meantime I'm thinking about moving my oncologist appointment up a few weeks.  But then again what would that accomplish?  Most likely not much. I think it is time for a hot bath, a warm cup of lemon water and some positive visualization.  I think it is time to focus on good things and heed my own advice...What you focus on expands.

Wednesday, June 6, 2012

Queasy Pops Product Review & Give Away!

Product Give Away! Queasy Pops & Queasy Drops!

photo courtesy of flickr creative commons
Since my diagnosis back in March of 2010 I have had nearly two years of chemotherapy, almost 50 treatments.  I was told about how chemotherapy often makes those who receive it nauseous and that I would be given other pharmaceuticals to help with this side effect.  I was given many different types of anti-nausea medicine but it seemed like the pills took so long to take effect sometimes and I would be sick before they had any time to work.  Luckily I stumbled upon Queasy Pops at my local chemo suite.  I thought at first that they wouldn't really be all that great, after all what is candy going to do to help me?! Oh boy was I wrong!  Within minutes of unwrapping the candy and popping (pun intended) into my mouth the wave of nausea was already getting better!  I quickly researched online and found out where I could order some of my very own.  I also found that Three Lollies has Queasy Drops as well which I prefer to sucking on a sucker on a stick.  They come in a variety of flavors (banana, ginger, pomegranate, raspberry, acai, green tea, and natural cola) and they are pharmaceutical free!!!
Everyone who has gone through chemotherapy knows that pretty much nothing tastes the same afterwards and that finding the right flavor that you would like to put into your mouth is sometimes extremely hard, and that is why I always ordered the variety pack so that way I could have options.
I just can't praise these little gems enough! So much so that I contacted Three Lollies and asked them if I could promote their product by having a "give-away" here on my blog.

So....what are you waiting for!  There will be THREE lucky winners and each one will receive one box of Queasy Pops (7 pops) and one container of Queasy Drops (21 pieces)! How cool is that?!
Tired of feeling nauseous from chemotherapy? Try some Queasy Pops/Drops for yourself and see just how awesome they really are!

How to enter:

Leave a comment here on my blog, say "hello" and maybe tell me a little about yourself and you will be entered in the drawing which will take place Tuesday June 19th at 8am.

Wednesday, February 15, 2012

As if cancer wasn't hard enough...

Anyone who is diagnosed with cancer has it hard.  There are so many things that used to come so easily, and so many things that were taken for granted that are now things that a cancer patient struggles with on a daily basis.  Before I found out I had cancer I thought the hardest things I would struggle with in my near future would be finishing my 2nd masters degree, finding an awesome job that I loved, paying my bills, and saving money for the future.  At the time I was also 2 years into struggling with my previous place of employment over a serious back injury that left me completely couch ridden for months on end.  I thought that was hard...hiring lawyers, court appearances, letters and meetings with the bureau of industrial insurance, trying to prove that I was injured and continually getting sent to shady washed up physicians whose job it was to prove me wrong.  Even though I could barely stand to brush my teeth or wash the dishes, even though I was in constant, agonizing pain, the independent medical examiners kept saying that I could definitely return to my old job of digging ditches, repairing water mains, and installing and replacing fire hydrants....yeah right.

Everything was starting to move forward...surgery was scheduled for mid April 2010, I was ready to start feeling better, had my intake forms all filled out and was ready to roll, or so I thought.

WHAM!!! Guess what? You've got cancer.  A really bad cancer that people usually do not live long from because once they find this cancer it has already progressed extensively in your body.  I cancelled my surgery per oncologist's orders and prepared for a barrage of tests, biopsies, port placement, PET scans, CT scans, endoscopies, colonoscopies, mammograms, any orifice that could be poked or prodded or scanned was thoroughly checked.  As a result I completely detached from my body, almost like my head and mind were a complete separate entity from the rest of my physical self.  My body was what they did things to.  I began to not even recognize myself in the mirror.  Honestly I did not even want to look at my body because every time I saw my reflection in the mirror I looked thinner and sicker.  I would sit and stare into my eyes (the only part of my body I wanted to see) to try to find something in those brown irises that I missed, some indicator that I was sick and had cancer.  I analyzed every little speck and variance in the colors wondering why they did not tell me sooner or why I had failed to see it before it got out of hand.  Nothing....just myself staring back at me, eyes filled with guilt about how I could have possibly let it get this far.

In the following months, while I was waiting to be approved for state health insurance, I was bombarded by phone calls from clinics, hospitals, and collection agencies wanting to know when they would be getting paid the tens of thousands of dollars I had racked up in various labs, scans and tests.  I even had hospitals (The University of Washington) calling me wanting money for an appointment that I had cancelled two whole weeks before the date of my appointment. They wanted over $200 for services that never even took place!  Talk about scammers!  I told them I would be dead before they ever got money from me.  They have not contacted me again.

Once I completed my graduate studies the time came for student loan repayment.  Again, letters, phone calls, etc.  Luckily most of my loans were through the federal government and are in the process of being forgiven for permanent and total disability.  Unfortunately, I had foolishly taken out a private loan that I had to get my father to cosign for.  Now I am battling AES and Citizens bank trying to figure out how in the world cancer girl here is going to be able to pay off 22K.  It sucks that because of my bad judgement my retired father is going to be held responsible for this debt.  I have no idea how this one is going to work out yet.  I am pretty certain that he is not too happy about it.  Luckily my grace period is extended until July buying me a little more time to try to come up with a plan.

I received chemotherapy treatments for over 20 months.  I calculated that I have gotten chemo at least 40 times.  The toxic cocktail was gemzar and cisplatin, drugs that were shown in studies to have the largest effect on cholangiocarcinoma.  These come with all kinds of physical side effects:

-damage to veins
-damage to kidneys
-neuropathy
-hair loss
-nausea
-fatigue
-chemo brain
-sleeplessness
-aching in bones and joints
-constant itchiness
-vision problems
-mouth/gum problems
-rashes
-thinning of skin
-horrible fatigue
-metal mouth/dry mouth
-low blood counts
-vomiting
-dizziness
-weakness
-shortness of breath
-tinnitus
-burning/numbness/tingling of the hands, arms, legs and feet
-confusion
-hearing problems
-loss of taste
-headache
-bruising
-mental or mood changes

I experienced all of these side effects.  I am actually still struggling with some of them (the highlighted ones) which brings me to my next point.

It is often overlooked and discounted that people have mental issues, mood swings, and unstable emotions when they hear that they have cancer, and exacerbated by the toxic chemo cocktails coursing through their veins literally eating away healthy cells in their bodies and in their brain.

Trying to deal with a cancer diagnosis emotionally is damn hard, toss in some toxic chemicals and it becomes exponentially harder.  I found myself crying at the drop of a hat.  The little bumps in the road became Mt Everest for me, impossible to get past.  I found myself angry at strangers as I watched them drink their healthy livers away in the bars that my boyfriend liked to frequent.  I was angry that I had a next to impossible time finding any restaurants that I wanted to eat at, as they all seemed extremely unhealthy to me (fried food, butter, cheese, milk, sugar) and I wanted to know exactly what I was putting into my mouth.  Food and what went into and onto my body became the only way I had any control over what was going on in my world and I damn sure wanted to have some control.

In September some members of boyfriends family moved in with us.  Two adults a two year old and a 3 month old who just moved from another state and had very little money, boyfriend wanted to help as much as he could of course, family is family.  With the new house guests came a new set of problems and I soon found out that one of our new house guests had a severe drinking problem.  This was the last thing I (with liver cancer) needed to have to deal with.  Boyfriend was in school or studying or unwinding at the bar most of the time and since I was constantly home fatigued from chemotherapy, I was the person who got to deal with most of it (screaming 2 year olds with stompy feet and crying babies).  Needless to say this situation created quite a rift between everyone.  That was about as dysfunctional as it gets.  Anyone who knows me well at all knows that I have a hard time keeping my mouth shut when it involves unfairness and injustice especially when I am forced to be a part of it.  Ultimately house guests ended up moving out and returning to their previous home.  Boyfriend was angry with me for "not handling the situation well" and didn't know if he could be with someone who didn't get along with his family.  To this day I still can't figure out how anyone with any ethics at all could think it was a good idea to move in with a cancer patient undergoing chemotherapy unless they were there to help that person.  The rift grows even larger...

In the year and a half following my diagnosis I did pretty well holding it together in spite of the difficulties.  My boyfriend confided to me (after much asking "what's wrong" on my part) that he did not find me attractive any more because I was so very thin from my treatments.  We began having serious issues communicating with each other.  Perhaps it was from his fear of losing me that caused him to become distant and non-communicative.  Maybe it was my mood swings or maybe it was because in his eyes I was not quite as perfect as he once thought pre-cancer.  Maybe we just grew apart for other reasons.  Money was also becoming a huge issue for us.  I had spent all of my savings on my naturopath and started receiving government disability assistance, not nearly enough to pay the bills.  My only choice was to move out and seek government housing.  I asked him if this is what it was really coming down to as we couldn't agree on a way to make it work and his reply was "If that is what you want to do".  This literally broke my heart.  I felt (and still feel) completely abandoned by him.  Granted I know that he has a mortgage to pay and bills of his own, but aren't two people who are in love supposed to try to find a way to make it work together?  He now has a roommate who gives him the money I cant.  We hardly ever see each other anymore.  We usually correspond via text message.  I don't even remember the last time he told me he loved me or showed affection.  I guess I am silly for wanting to make things work out and for continuing to hold onto the tattered scraps of what was once a truly awesome relationship where we told each other every day how lucky we were to have found the other.  Maybe neither one of us wants to let go, after all we have been through so much together one would think that all of that adversity would have made us stronger and that cancer would have made each day just that much more precious.

So here I sit, 39 days from my two year "cancer-versary" in a shitty government housing (with other "disabled" people who most likely did too much crack or meth) that smells like cigarette smoke, unchanged old man diapers, and greasy food while garbage trucks "beep! beep! beep!" incessantly at all hours of day and night outside my window that I always leave open for the fresh air wondering how in the hell it ever got to this point.

Most days I am able to distract myself from all of the less than desirable things going on in my life.  I am usually pretty good about finding that "silver lining" in even the worst cases.  I am a glass half full kind of person, usually eager to smile and be a dork.  I still am.  I am just extremely frustrated that there is just always some new bag of shit at my doorstep that I need to deal with.  I am convinced that there is a lesson in all of this that I have not learned yet and that is why I keep not being able to find the bottom yet, get my feet back underneath me and climb the hell out of this gigantic hole I seem to have gotten myself into.

It is times like these that I constantly remind myself of my own advice and give myself an attitude adjustment.  After all, people are dying all of the time from cancer...what to I have to complain about?

My advice to myself:

What you focus on expands.









CANCER CAN SUCK IT!



















Tuesday, February 7, 2012

What it all means

I am psyched!

Exploring at the beach
It has been 69 days since my last chemotherapy treatment.  I think I have had roughly 40 infusions in the 20 months since I was diagnosed with cancer.  I stopped chemo at the end of November.  I can say that I honestly can't tell a difference from how I felt yesterday, but I can tell that I feel better than I did a month ago and a lot better than I did 2 months ago.  I think that I am still only operating at about 40% capacity both mentally and physically with emotionally being slightly better (more around 50%) because I just do not feel like myself yet.  The small things fluster me, any sort of thing that I need to concentrate on becomes a gigantic undertaking but when I finally do accomplish them it feels really good.  I've been spending a lot of time in my apartment, organizing, manifesting, sending out mindful intentions of what I need to be healthy and happy.  I had a wonderful 2 hour Skype conversation with a beautiful friend of mine.  I have been doing really well with my two alternative treatments, remembering to take them every day and not hating it when I do.  It is easy to not hate them, they have had absolutely no side effects at all for me (HURRAY!) and if anything I think I am sleeping much better.  I actually have been getting up at my usual time of 6am as opposed to the "anywhere between 11am-1pm" routine I adopted while undergoing chemotherapy.  The side effects of chemotherapy and all of the drugs I ingested to combat those side effects really have done a number on my body and mind, but it feels so good to have some kind of normal sleeping routine again (even though it might be the only thing that is normal).

I've been wondering exactly how long it takes to get over the majority of the chemo side effects.  I am pretty sure that it has most likely done some irreparable damage to my body and have heard many stories about people who have had chemo over 10 years ago who still fight with it's effects.  Of course doctors of modern medicine will not tell you this.  They tell you that when you stop getting chemo the side effects (nausea, ringing in ears, neuropathy, chemo brain, etc.) will all go away, just like that.  Poof!

They LIE!

They also lie when they tell you that it is ok for you to eat an entire pint of ice cream, a bunch of meat (even though you can get iron and protein from plants and legumes), ginger ale for nausea, etc.  Yes, I was actually told these things, which brings me to the point of today's blog.

The reason I quit chemotherapy was not because the regime was finished and it was my last session.  My oncologist told me that I would be receiving chemotherapy until the day I died.  That was not ok with me.  I have been really confused since last August when my oncologist sent me in to see a surgical oncologist to see if I could have my tumors surgically removed.  She ordered a PET scan, looked it over and said that she couldn't remove them because it left me with virtually no liver left and many of them were in places that they couldn't remove.  I was still not an option for a donor, living or deceased. So she referred me to a radiological oncologist who reviewed my PET scan and arranged an appointment with me.  He had a miracle treatment for people who have cholangiocarcinoma that was very promising.  The treatment was called Y-90 (Yttrium-90) and it consisted of injecting radioactive beads the size of a grain of sand directly into the tumors via a catheter inserted into a vein in the groin.  It was supposed to have minimal side effects and be pretty painless.  I was the perfect candidate, young, no other health problems, otherwise healthy etc. and I was very excited about it.  He walked through the door to the exam room, introduced himself and then said that he would love to help me and that he was excited to do the procedure on me but upon review of my PET scan he couldn't.  He said the reason that he couldn't do the procedure was because the PET scan showed NO EVIDENCE OF DISEASE.  He then proceeded to say how honored he felt to meet me, how in the world did I do it!?  He said that no one has ever had such extensive CC and in 17 months had a scan that showed no living cancer.  He couldn't do the procedure because he could find no living cancer to target.
Pumpkin and honey moisturizing
and firming mask makes your
skin feel oh so good!

I was excited to see my oncologist and tell him the news.   I thought he would be excited, thinking that he might give himself a pat on the back for prescribing the right treatment for me.  He was less than enthused.  He said that CC is so slow growing that there are most likely still cancer cells there that the PET scan didn't pick up.  The thought of stopping chemotherapy did not even present itself.  Even the radiological oncologist thought it would be a good idea for me to do at least one more chemo regime just to make sure.  I stuck it out for 6 more treatments.  I really feel that chemotherapy was the best choice for my predicament.  My cancer was so extensive that I think I made the right choice, knock it back some so that I can let my body do the rest was my plan.  Then I got to where I was feeling worse, day by day.  I was losing a LOT of weight, at one point down to 111 pounds, which for me is pretty thin.  My brain was turning into mush, literally.  I was in complete emotional distress (although events that were happening then would not have been easy to deal with regardless of chemo) and had severe mood swings.  I couldn't think.  I would get lost trying to keep up with a sitcom.  I had come to the point that I knew I needed to stop.  It was an emotional decision, the uncertainty of making the right choice hung heavy over me.  So what does this all mean now?
Steel cut oats with blueberries
cranberries, cinnamon,
walnuts, honey,
and almond milk.

What it means is that even though I am not being pumped full of toxins I still have to be vigilant about my choices, especially what I eat.

During the latter part of my chemo treatments, when I was losing all the weight, I abandoned my mostly vegetarian diet and started eating meat and dairy again, things I highly avoided (along with sugar) previously in an attempt to gain weight.  When I quit chemo I was still eating meat and dairy and my sugar intake had gone up from the sweet tooth cravings I got when I ate meat.  Luckily I caught myself.  This realization came when my jeans would not button one morning.  I have been super vigilant about what I eat, more like the diet I adopted after I learned I had cancer.  I eat a LOT of vegetables and legumes.  I make a green juice nearly every day, sometimes two.  I eat things high in phytoflavinoids such as blueberries, raspberries, pomegranate juice, strawberries, cherries but I do not eat a lot of other types of fruits as they have a lot of sugar in them which anyone with cancer does not need as it actually excels it's growth hint, hint.....


Being mindful about what we eat is how we can take control of our health.  Ironically it is also how we can take control of a lot of problems our world is now facing.  It takes so many more resources to produce one pound of meat as it does to produce one pound of produce or grain.  On top of all of that our meat is coming from sick animals that have not been fed a proper diet and injected with all kinds of toxins to prevent them from spreading disease.  Don't get me wrong.  I grew up eating meat.  My dad was a butcher for many years and we depended on it for our family's survival.  I have always liked a medium rare steak, rib eye was always my favorite.  If it didn't make me sick and our world sick and result in the mistreatment of so many animals then I would eat it.  It has actually been proven that a diet high in animal protein (20% of your diet is high, this includes dairy) actually highly contributes to the growth of cancer, especially in the liver and that a diet high in plant and legume protein (less than 5% animal protein, this includes dairy) has been proven to halt cancer growth!


So again, what does it mean?
Shiitakes smell and taste delicious!

It means that no matter how much you love that steak, ice cream, milk, chicken, fast food, or whatever that is animal derived you are actually willingly, consciously, and intentionally creating an environment in your body where cancer can thrive.  Not to mention that your cholesterol will most likely also go up. This applies to organic meats as well.  Meat is meat, some have added toxins, but all have the ability to enhance cancer growth.  This is why I eat a lot of vegetables.  I don't want to die.  I assume that neither do you.

It means that I have to be vigilant about my diet, which isn't hard.  I walk by the meat case occasionally just to see if anything can tempt me but nothing ever does.  It actually kind of grosses me out.  Meat didn't look like that when I was a kid.  Meat didn't taste like that when I was a kid.  I know how it is going to make me feel if I do eat it (bloated, indigestion, lethargic, constipation/diarrhea, all those wonderful things) so that is enough for me.  I walk away and find the tempeh instead.  I never eat processed foods.  Well, ok, I am pretty sure that the almond milk I buy is processed.  There are a lot of unneeded ingredients on that label and the box it comes in is neither healthy for me or for the environment.  This is why I am going to start making my own almond milk and rice milk (horchata's baby!).
Honey roasted spaghetti squash with
green beans, tempeh, and shiitakes

What it means is that now, more than ever, I need to take control over my health using food as my medicine as we all should.  Even and especially if you are going through cancer treatments such as radiation or chemotherapy.  It is so important to fuel our bodies with nutritious foods rather than empty calories.  Use those ovens or purchase a toaster oven (you can find awesome ones at the Goodwill by the way) and take your microwave to haz mat where it belongs.  Microwaves literally kill your food sucking every single nutrient right out of them leaving you with a useless meal that you will only be hungry from a short time later, leading to more eating...get the picture?  I have not used a microwave in over 3 years and I do not miss it one bit.  I am ashamed to say that at first I actually had forgotten how to heat up food on the stove or in the oven, but it quickly came back.  It is nice to sit in the living room and smell the aroma of a baking sweet potato knowing that I will soon be eating it.  It actually makes the experience better for me and the beauty is that for about an hour I can just read or watch tv or do a load of laundry and I don't have to stand there and cook.  Microwaves are the ultimate "instant gratification" machine.  We just can't wait, or we are too busy.  With just a little planning ahead you can pop your meal into the oven and by the time you have relaxed a bit from your day you will be eating your healthy and delicious meal that you got to enjoy the smell of while it was cooking.  What could be better than that?

Make juice not war
I am not meaning to be preachy or condescending at all.  I just know that I want you all to be healthy and sharing the things that have been making me healthy in spite of extensive, aggressive cancer and  20 months of chemotherapy is one way I can share the resources and knowledge that I have spent so much time committed to gathering since D-day.  This stuff has been proven time and time again, but our society has its interests so mixed up that the higher powers will never tell you these things, the simple things that can lead to a long and healthy life.  They want to keep you sick so that they can keep making drugs to treat you with.  Pharmaceuticals are big, big money.  We all know that.  I also feel that they can have an appropriate time and place.  I certainly think that the chemotherapy in combination with the other natural therapies I have been getting have paid off for me.  The time did come though that I felt that it (the chemo) was doing more harm than good.  For me, if I don't feel good about something there is no point in doing it because I will only focus on the bad and if you are only focused on the bad what good can come?

Please eat more plants.

Wednesday, January 25, 2012

I've been robbed!

There are some things that have been rolling around in my head like loose marbles for quite a while now and I need to get them out.

My life timeline
I knew that when I was diagnosed with stage IV cancer back in 2010 my life would be forever changed from that moment on.  I also knew that things weren't going to be in any small way predictable anymore.  I got diagnosed in my last quarter of my second masters degree at Antioch University in Seattle.  I had plans, big plans for my future.  For once I felt as if I was going to find my calling, my ideal career, my place in this world to make that "positive contribution to society" that I had been yearning for.  Instead it took me about 6 months to complete that last quarter.  Needless to say that at first I was still trying to adjust to my diagnosis and later I would find that I had to battle chemo brain, fatigue, nausea, pain, and doctors appointments to finally complete the rest.  Whew! That was finally done and degree is safely tucked away in my filing cabinet awaiting its new home in a frame on my wall with my other degrees.

drugs, drugs, drugs
That completed I watched as my finances shrank away to nothing.  I spent over $30K in one year on my own healthcare.  The ironic part about it all was that the chemotherapy and the pharmaceuticals were for the most part "free", covered by the state insurance I got lucky enough to receive.  The natural medicine (the IV's and supplements) were the things I paid for.  Just in case you don't know this insurance does NOT cover natural medicine.  They only cover the man made drugs that you take that might kill cancer but also kills all the good cells in your body as well.  I would take a pill to combat the side effects of chemotherapy, then take another pill to combat the side effects of the last pill, then another pill to combat those side effects.  There were many, many days I would take more than 80mg of oxycodone just to make my pain somewhat bearable.  The nurses said "that isn't much, you don't have to worry" but I was worried about the damage the drugs were doing to my healthy parts.  Don't get me wrong! Chemotherapy (or the combo of chemo with the natural) has done very well for me.  I just got to the point that I could not mentally function anymore from it and had to take a break.  Anyway, back to my point.  Bank account drained and now I am living on SSI and EBT and I am a far cry away from that career I worked so hard to place myself in.  Cancer stole that from me.  Perhaps that just means it wasn't supposed to happen that way after all and my calling is somewhere else in this world.  I still have trouble letting that go.


Pearl and my now sold kayak

The next big thing was the decision to get rid of my car.  My dream car.  I had wanted this car for so many years and I knew I would be driving it until it fell apart so I made certain to get it with all the bells and whistles.  I purchased a 2009 Subaru Outback a few years ago.  My intention was to be able to pay it off within a year or less.  Instead I found myself not being able to make my car payment (which was quite high) and making the trip to the dealer to sell it back to them.  Luckily I had paid enough on it to get out of it free and clear.  So with that I found a cheaper used Subaru sedan that only requires a $200/mo payment.  This may sound incredibly stupid and trivial to some of you out there but to me it was a very emotional experience.  I know it is just a car and it still takes me to the same places but to me it was more than that.  The car I lost (her name was Pearl) was the product of all of my hard work and effort.  It was hand picked by me and it was new so I knew I didn't have to worry about it needing to be fixed for a long time.  It was the product of my efforts.  It was something that I had strived for before my diagnosis and achieved, then just as quickly it was something that my condition, my cancer, had taken away from me.  Little by little things got plucked away. Yet another accomplishment that I still have some trouble letting go of.

My nasty apartment complex used to be
a hospital.  Kinda creepy huh?
Next came the living situation.  Since the SSI/EBT was barely paying my bills, I was no longer able to help out with the mortgage, utilities, groceries, etc.  This ultimately led to a lot of heated arguments between me and my boyfriend.  I knew he couldn't afford to do it all by himself.  I asked him if he thought it would be best for me to move into public housing and he thought it would.  Yet another thing taken from me, my home.  I am now living in a tiny 350sq/ft studio in a giant 14 story building with about 450 other people.  One of my neighbors is an alcoholic and another smokes constantly in his apartment (even though no smoking is allowed).  The smell and smoke waft throughout the hallways and before I put weather stripping around my door frame, into my apartment.  Not a very healthy atmosphere.  Oh, I cannot forget the very first time I had a friend over.  I came downstairs to meet her (you cannot get into my building unless you are a tenant) and as we walked into the building we encountered the Portland police arresting a large man who smelled strongly of weed.  Most likely a drug dealer.  As we arrived on my floor in the elevator we heard shouting and screaming coming from somewhere down the other wing of the building.  Thanks cancer.

I lost my mind.  Well I didn't so much lose it as it was stolen by cancer and chemotherapy.  Even though it has been nearly two months since my last chemo treatment I still constantly battle the fog that is a result of the treatments.  I am not so close to a mental breakdown as I was at the beginning of the year, but I still struggle with trying to concentrate on just about anything.  My attention span is just not there yet.  I easily get confused and frustrated at even the slightest things.  I cannot make a decision to save my life, so I just do nothing at all feeling hopeless sometimes often letting important things fall to the wayside because it only frustrates me and drives me to the edge to try to accomplish them bringing on yet another mini-meltdown.  I still constantly forget many things and still have trouble recalling events and finding the right words.  I will be in the middle of a sentence and just stop because I lost my train of thought and for the life of me forgot what I was talking about or going to say.  Then the person I was talking to tries to help by reminding me of what we were talking about but it only frustrates me more because I can't remember.  Thanks cancer.

I really would love to work, but if I do it has to be an awesome job with decent pay and benefits such as medical etc.  I cannot work a 40 hr week right now so part time would be a requirement.  I cannot foresee how well I will feel on any given day (although that is getting a little better) so having a set schedule wouldn't work well as I may need to call in sick or leave early or show up late from time to time.  If I worked part time my medical coverage from the state will get screwed up and my rent at my crappy studio would cost much more AND I would not get SSI or EBT (or I would get much less) so I am now stuck in a no win situation.  And just who would want to hire cancer girl who has so many needs?  For now I am going to volunteer to learn something new and to get my feet back underneath me slowly.  I HATE YOU CANCER!

Jeff & I at White Pass on a backcountry adventure in '09
The relationship with the man I fell in love with 8 months before my diagnosis has suffered greatly from cancer. Can you imagine finally finding the one you want to spend your life with just to find out 8 months later that they have extensive and aggressive stage IV cancer and the statistics all say that people with that certain type of cancer usually live less than a year? Then once you think you have a handle on all of that you have to deal with your loved one vomiting, writhing in pain, forgetting everything you have said or done recently, constantly having the same conversation over and over with them, dealing with the incredible mood swings that come from the combination of chemo and the trauma of being diagnosed in the first place. Suffice it to say that my relationship with my beloved has not been easy at all since D-day (diagnosis day). In the last year we have argued, miscommunicated, and misunderstood each other more often than not. We used to tell each other every day how lucky we felt that we had finally found each other. We would day dream about all of the things we were eager to do and experience together and spend hours talking about road trips and climbing or skiing trips or peaks we wanted to summit together. We don't do that much anymore. We hardly ever talk about anything that is emotional or involved or important. I think we are both just too raw and hurt from this whole ordeal. he needs time to heal as well. That's the thing about cancer. It doesn't only affect the one diagnosed, it affects everyone around them as well, especially those who care for or about them. It changes the person who has it, they will never be the same ever again. My therapist calls it "adjustment disorder" similar to "post traumatic stress disorder" only it has its own name. Much like anyone who goes through an extremely traumatic experience, the newly diagnosed cancer patient is broken, dismantled, and reconstructed. If they are lucky to live long enough they are somehow supposed to find their "new normal" in all of the rubble and chaos called their life that has crumbled to pieces around them like the debris from a tornado crashing down all around and you are having to watch so you don't get hit by a falling truck or boat that should have never, by all laws of nature, been in the sky in the first place. Much like picking up after a tornado the rebuilding process is slow and some things that used to be are no longer while some of them get rebuild even better than before. That's what we don't know, no one does really, which pieces get rebuilt and which ones don't. Only time will tell that.
Jeff and I at one of my early chemo treatments

 A blogger friend recently posted about "keeping the 'thief' away" in her post about a "typical" cancer diagnosis.  Her words resonated with me so much that it spurred me to post about those things that have been bothering me for so long.  After diagnosis you are in virtual, perpetual hell wondering what the scans will say, if your blood labs are sill looking decent, if all those other aches and pains are cancer, or just exactly what your day will hold for you.  I constantly struggle with these things as I am quite certain most other cancer patients/survivors do.  "Am I eating enough veggies?" "Did I remember to take my supplements today?" "Did I remember to order the ones I am out of?" "What will my next scan say?!" "When will I ever feel somewhat 'normal' again?" "Will I ever get my brain back?" "When will I ever be able to make my own living again?" "I wonder how many of my friends I have disappointed or pissed off by my flakiness?" "When will I ever be able to fully return to life again?" "When am I going to stop hurting and losing things?" I cannot expect anyone of my friends and family to understand what I feel physically and emotionally.  I know that they sympathize with me about my turmoils but they really do not understand.  So many times I have kept how horrible I have felt from those I love because I don't want them to worry about me needlessly.  I think cancer patients do that a lot, keep things bottled up inside.  There are support groups out there, but I really don't want to sit and commiserate with others about how shitty we feel, dwelling on our diagnoses and blaming cancer for everything wrong in our lives.  I am tired of cancer being the biggest thing in my life.  I am ready to move on but moving on is the hardest part.  How can one move on when they are so stuck in the place that cancer left them?  Little by little I guess, every day bringing something different, sometimes good, sometimes bad.

My super conspicuous port sticks out
like a sore thumb
I long for a new home, away from druggies, alcoholics, police arrests, people smoking in the apartment next to me, free bread on wednesdays, conflict resolution classes, signs in the laundry room telling you to not spread bed bugs (WTF!) and government housing in an old scary hospital building.  The only other time I have lived in a place so small was when I was able to walk out my front door and be in the mountains.  It isn't the small size of my apartment that I have trouble with.  It is the fact that when I leave my front door I am accosted by cigarette smoke, mental cases, drug dealers, and other undesirable things.   I make the trip from my front door to my car as quickly as possible trying to keep my eyes down and my hat pulled low over my head.  Maybe I'm stuck up, I don't know, but I really don't care to make any friends in my building.  I don't even want to go home to be alone in my tiny place where I am left to only my thoughts.

I need to do some more healing before I will be able to make my plans happen.  That is another thing that is constantly on my mind....when, WHEN is that going to happen?  How can one plan for something when everything is so uncertain and up in the air?  How can you get off of government assistance when you cannot get a job? What exactly is my plan anyway?

These are the things bouncing around in my head like a pinball threatening to make my brain tilt.  Every great once and a while they don't seem quite so bad, but they are constantly nagging at me every second of every day as I constantly contemplate "What am I going to do now?"

Right now I am going for a walk. Then I am going to spend some time snuggling with my kitty girl while I avoid doing some important things that I really need to do but only end up frustrating me and turning my brain into mush.

There.  Ahhhhh.....
I had to get that off my chest.  I can see the silver lining.  Right now I am just waiting for the clouds to part and the fog to lift.



CANCER CAN SUCK IT!