Showing posts with label remission. Show all posts
Showing posts with label remission. Show all posts

Tuesday, March 27, 2012

"Sympathy" pain

Jeff and I at chemo July, 2010
I am still on cloud nine from the news from my recent scan.  Things look good here in cancer land.  I have yet to hear the words "remission" but I really don't care.  I suspect that is due to the fact that I still have cancer in my body, it is dead and shrinking every day, but it is still there.  Remission is kind of a dirty, tricky word anyway.  To be in remission means that you can just as easily be out of remission at any given moment.  Being told that I am in remission would cause me to worry about possibly being out of remission and honestly, I would rather not have that hanging over my head.  I would rather spend that energy in much healthier ways, like getting healthy, recovering from cancer and cancer treatments, regaining my mind power, focus, concentration and memory.  It still gets better on some small level every single day, not noticeably better from day to day, but better in comparison to months ago and for that I am so very thankful.

My two year "Cancerversary" was this recent Saturday.  I knew it was coming but when the day came I actually completely forgot all about it.  I guess I have had other things on my mind.  I should have been celebrating.

The boyfriend and I have been growing apart for quite some time now.  We have been losing our connection, both emotionally and physically.  I have felt it since the day he came with me to hear those words "You Have Cancer".  I can still vividly remember the look on his face before those words were even fully off the lips of the doctor.  At first I thought it was shock.  This is what I told myself for a long time.  What I failed to see, or perhaps did not want to see, is that it was indeed shock, but also some other things like pity, sympathy, and with those words the first unconscious brick was placed in the wall that would later come between us and our love for each other and lead to the demise of our relationship.

Every time I had a procedure or went for chemotherapy, another brick was placed in that wall.  Every time I confided in how much I hurt physically, how uncomfortable I was, every time I vomited or was too weak to fend for myself another brick went into that wall.  He began distancing himself from me.  He felt as if there was nothing he could do for me.  I am sure it was not easy for him to watch someone he loved having to go through such a fight for their life.  There were times he would even say out of frustration "I can't deal with this".  The first time was shortly after my diagnosis while we were in Hawaii.  It was just too much for him to handle and he shut down.  He stopped communicating with me completely.  I tried every tactic from tough love, to heart felt conversations to becoming angry and bitter but nothing could get him to open up about how he really felt.  This went on from the day I was diagnosed until one week ago.  There came a time that I finally gave up on trying to get him to communicate with me.  That was around last November.  We didn't spend the holidays together, we only hung out to ski or have a quick bite of lunch or dinner together then we both went our separate ways, usually with me going home and him going to a bar.  It was at one of those bars where he met someone who could fulfill his need for physical stimulation.  We hadn't had sex in months.  Even though we were still in a relationship he cheated on me.  This happened the day after I found out the awesome news from my last PET scan.  Perhaps he didn't feel quite so guilty about it because I no longer had cancer.  He wouldn't seem like such an ass then as he would if he cheated on his girlfriend while she was fighting for her life.  I don't blame him for seeking sexual connections with someone else, I had become unavailable to him in that way due to the lack of communication resulting in the lack of knowing how he felt about me.  I don't hate him.  Hate is a word I rarely use.  It just isn't in my vocabulary.  Much more can be solved from love than hate.

Then we had a much overdue conversation.  He came clean, and honestly talked to me about how he had been feeling for so long.  I know he still loves me and cares about me.  But there is a huge loss.  The fun we used to have, the connection we shared, the way we were so completely and deeply in love was lost the day I got my diagnosis.  All he could see was "sick Laura" and he felt as if he could do nothing at all for me.  He stayed with me for nearly two years yearning for what we once had pre-cancer.  He wished, as did I, that we could find that love again.  I watched hopelessly as my body ravaged from cancer and chemotherapy became a former vision of itself and became undesirable to the person I loved the most.  All of those times he used to sneak up behind me and hold me while planting little heated kisses on my neck were just gone.  It was if if he was afraid to touch me, afraid he might hurt me or break me or afraid that he might get "the cancer".  For two years he kept his mouth shut and did not communicate his true feelings.  He was afraid of hurting me and my feelings.  He fell out of love but never told me.  He stayed with me partly because he felt sorry for me!  He had the courage to finally disclose this to me recently.  Now let me just say that I am so appreciative to finally have an honest heart to heart conversation with him, but it still doesn't make it easy to hear that the person you loved was not with you out of love for you, instead they stayed with you because they had pity on you!  I had my suspicions that this was the case but none the less, it is still a hard truth to take.  An emotional punch to the gut, some one ripped your heart out of your chest and stomped on it a few times before returning it a bruised and broken mass.  The last two years of my life (in the relationship arena) have been a sham, nothing but deceit, dishonesty, lack of communication, lack of love, and full of someone who I though was acting out of love actually acting out of pity.

It hurts, cuts deep, makes me wonder when all of the loss that cancer brings with it will ever end.  Having cancer is a very lonely place.  I have a huge support group of friends and family out there and they, YOU, all have been my one constant in my life.  For that I thank you all from the very depths of my soul. As for my journey through cancer on a daily basis, I did it all alone.  I had no one to hold my hand when my body screamed from the toxic chemo cocktails injected in my veins.  No one to check on me when I woke up in the middle of the night vomiting my brains out.  No one to hold me and tell me that it would all be ok when I was so afraid of what was ahead.  Instead I put on a smile as best I could, tried to make it work, and hoped to god, the universe, pink unicorns, whoever/whatever that my beloved and I could make it through this and come out better on the other end.

I still love him.  I love the way we were, the luckiness and thankfulness we shared with each other in the beginning. I miss the planning and daydreaming of all the things we wanted to do together.  I miss the sweet, loving kind man I fell in love with.  This is what I will hold on to and will keep close to my heart.  Not the bitterness, lies, cheating, and pity.  We all have ways of dealing with, or not dealing with cancer.  Surviving cancer has been by far the hardest thing I have ever had to do in my life.  I found a way.  I love my life! I love my lifestyle! I love who I have become from all of this! I love ME!  True, it hurts now but I can also see that it will lead to a blossoming of character and spirit and new growth, so fitting for spring.

Hopefully this will be the last of the hurt for a while.  Time to devote to myself and helping others.  Time to heal from all of the trauma and deceit.  Time to forge a new path into a bright new future filled with love, joy, compassion, admiration, and gratitude for every moment of every day.  A time for wholeness, or Sowelu a rune that was tattooed on my body so very long ago that constantly reminds me that we are all a part of a greater whole.


And just for the record,

CANCER CAN SUCK IT!




Thursday, September 1, 2011

I'm an anomaly...great! Someone told me that ALL miracles are anomalies!

Well, the appointment with my oncologist Dr Shao was a little disappointing and bubble bursting...
He is not convinced that all of the cancer in my liver is dead.  His comment was that CC is super slow growing so it is not surprising that it did not show up on the PET scan.  I am all in agreement that I would much rather be safe than sorry so I am continuing to get my normally scheduled chemotherapy treatments every other week (although I do have a 3 week break right now, woot!) and in 3 more months we are going to do another scan to see whats going on.
In the meantime, I will be speaking with all 3 oncologists to see why each one has a differing opinion...That will be interesting.

So I guess that that piece of paper from the official PET scan report that said "IN REMISSION" was just a teaser after all....It is NOT official yet....But in my mind I KNOW that I am kicking some cancer ass.  Just because they have never seen anyone react so positively before and just because NO ONE has ever cured themselves from stage IV INCURABLE, INOPERABLE cholangiocarcinoma, my job has suddenly gotten a lot harder.  Not only now do I have to kick cancer ass, but I also have to convince the medical world that it can be done.



I've got a message for them and for stupid cancer.

I AM JUST THE WOMAN FOR THE JOB!

...so some (most) believe it can't be done, that is my motivation to prove them wrong

My mom knows this well enough...

If you want me to do something, DON'T keep asking me to do it
LIKEWISE
If someone tells me 1 million and one reasons why I can't/shouldn't/it wont work/you'll never make it/etc then you are damn straight that I will make it my personal mission to prove them wrong.  This is no exception.

Like I have said before,

Cancer Can Suck It!

...and by the way, it has been quite the emotional roller coaster hasn't it?

Tuesday, August 30, 2011

CANCER CAN SUCK IT!

I am going to write a more lengthy post about this a little later this week but for now I just have to share my news to those of you who may not have heard yet.

After my appointment with Dr Perkins the surgical oncologist on Monday I had another PET scan on Wednesday and an appointment with a radiological oncologist named Dr Jason Bauer who was planning to administer Yttrium-90 direct radiation beads the size of a grain of sand through a catheter, about the size of a human hair, inserted into my groin and threaded through veins and such into my liver.
He came into the exam room, introduced himself and immediately began complementing me on how great and healthy I looked in spite of having extensive and aggressive stage IV cholangiocarcinoma.  He commented that he was close in age to me as well as Dr Perkins (the surgical onc).  He was basically in awe.
Then it happened. He got all serious and told me that he really wished he could help me with his miracle treatment but he just can't.  The reason he can't is because the PET scan (this makes the only one I have had since my first diagnosis last March 24, 2010, yes that's right LAST YEAR) shows that I have


 NO MORE BIOLOGICALLY ACTIVE OR LIVING CANCER IN MY BODY!!!

So what does this mean??? it means that I am officially 

IN REMISSION!!!


One and a half years ago I was given about 6 months to 1 year to live.
One and a half years ago I was given a 20% chance to live 5 years.
One and a half years ago my life changed forever.
My priorities became very clear.
Life became very simple yet unimaginably complicated all in the blink of an eye.



Even though it was Friday when I got this news I am still in shock.  It is still sinking in.
I have my regularly scheduled chemo and appointment with my oncologist tomorrow so perhaps it will seem more official then.
I am still going to get chemo for a while to make sure all those  bastards are completely fried and that there isn't one little cell that is still clinging to life to turn into full blown tumors again.

The reason they haven't found this out yet is because they haven't done a PET scan, they figured they didn't need to...the cancer most likely hasn't spread due to the nature of CC and the CT scans showed that they were always shrinking AND no one and I mean NO ONE just cures themselves of severe cholangiocarcinoma EVER and especially in 1.5 YEARS!!!

Everyone is flabergasted, floored and shocked.  They all want to know "What did you do?".
I told them, you all know what I've been doing.  Eating right (no chemicals, no processed foods, organic always, limiting or eliminating all together dairy, and animal proteins, juicing) taking supplements and vitamins, getting nutritional IV's, getting exercise as much as possible when I feel good, HAVING A POSITIVE ATTITUDE, not meaning I am always happy, meaning I always try to find something good, some positive in every situation no matter how crappy it is and how hopeless it feels and how alone and abandoned and scared you are and no matter how it seems and feels like the ENTIRE UNIVERSE is conspiring to your disadvantage, and no matter how much I sometimes HURT both physically, emotionally, mentally, spiritually, etc I just never EVER gave up, EVER!

I also have an amazing support network, very loving friends and family, kick ass, state of the art, cutting edge doctors on my side.

I made these changes in less than a month.  I didn't have the time or luxury to do it gradually.

More later, I LOVE you all and wish you all the happiness and health in the world.

Laura
The Cancer Assassin